Resources for Self-Advocates
As a person with a disability or a family member, your input into the research process with your local UCEDD is absolutely necessary. By including your voices and concerns, you will make the research relevant and useable in everyday life. Below you will find articles, links to other web pages, and other information to help you work in partnership with your UCEDD. These tools will help you learn about the research process, working with UCEDDs, and building and maintaining meaningful partnerships with community groups and organizations. To have this webpage read to you, please play the audio file. Beach Center on Disability PARtnerships - Ursula Arceneaux Markey Participatory Action Research to Understand and Reduce Health Disparities - Olshansky et al. Olshansky et al., This article describes the method of PAR, supports the appropriateness of PAR to learn about and reduce health disparities, and then presents some specific examples of research projects that have employed or are planning to employ PAR.
Santelli et. al. This article describes a PAR project designed to evaluate Parent to Parent programs in five states in the United States. The project successfully gathered evaluative data about Parent to Parent self-help programs.
Taylor et al., This article discusses how concepts and strategies of PAR can be used to inform service development and evaluation in occupational therapy.
Turnbull et al., A discussion of using a PAR approach to conducting family research.
LinksCommunity-Engaged Scholarship ToolkitHuman Subject Protection Power Point (Harvard University Kennedy School of Government, 2001) Community Tool Box (CTB) Community-Based Participatory Research: Assessing the Evidence Tips for Researchers Using PAR for the First Time Resource from the Beach Center, University of Kansas, Website Post A New ResourceHave you found a new resource that you think would be beneficial to the online toolkit? Please let us know! Give a brief description of what the resource is and its source. You can either suggest a link to a web page or ask us to upload a document.
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