Links to Agencies and Organizations Nationwide
Administration on Aging (AoA)
We've selected several specific sections from the Administration
on Aging website:
Because We Care: A Guide
for People Who Care
An online resource for caregivers of an older family member, adult child with
disabilities, or older friend.
"Elders
& Families”
This section of the AoA website is designed to help older people and their
caregivers find information and resources on a variety of aging-related topics,
including issues affecting older adults, the services and opportunities available
to assist them, and more.
Resources for
Caregivers
An online resource guide for those who are caring for an older family member,
adult child with disabilities, or older friend. The guide provides information
and a range of suggestions to make caregiving easier and more successful--whether
you are the caregiver or the person who ensures that your family member or
friend receives the best possible care from others.
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Resource
Directory for Older People: This 120-page directory is online as a pdf
document. When you get to this page, and follow the directions to view
the directory.
This directory lists Federal agencies, Administration on Aging-supported
resource centers, professional societies,
private groups, and volunteer programs. Some deal mainly with older people
and their
families while others serve professionals who work with older adults and
still others target
people of all ages.
The directory is arranged alphabetically by organization name, and there
is a general subject
index. Every effort was made to publish a brief but accurate overview about
each listed
organization. Readers should contact each organization directly if they want
more detailed
information.
The National
Family Caregiver Support Program (NFCSP)
This program was developed after listening to the needs expressed by hundreds
of family caregivers in discussions held across the country. The program calls
for all states to provide information and assistance to caregivers, to organize
support groups, to develop respite care programs, and more.
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National Caregiving Organizations
Support groups, membership and advocacy organizations, etc.
Caregiving.com
This site contains resources for caregivers including a message board, a way
to "ask the experts," a book club, tips to help you take care of
yourself, and more.
ElderCare Online
For people caring for an aging spouse, parent, relative, or neighbor. Topics
include Alzheimer's & dementia care; home care & independent living;
insurance, legal & financial matters, residential options, and more.
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The Family Caregiver Alliance (FCA)
This organization, founded in 1977 in San Francisco, provides specialized information
on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease,
ALS, and other disorders and long-term care concerns. The site's resource
center includes an online support group and online caregiver consultation.
The clearinghouse contains fact sheets and reading lists.
The National Family Caregivers Association (NFCA)
NFCA is a grass roots organization that reaches across the boundaries of different
diagnoses, different relationships, and different life stages to address
the common needs and concerns of all family caregivers. Based in Kensington,
Maryland, the organization strives to minimize the disparity between a caregiver's
quality of life and that of mainstream Americans.
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National Alliance for Caregiving (NAC)
The NAC is a non-profit joint venture, created in 1996 to support family caregivers
and the professionals who serve them. NAC's founding partners are the American
Society on Aging, the Department of Veterans Affairs, and the National Association
of Area Agencies on Aging. The founding sponsor is Glaxo Wellcome.
The Well Spouse Foundation
This national, not for profit membership organization is based in Freehold,
New Jersey. It gives support to wives, husbands, and partners of the chronically
ill and/or disabled. Monthly support groups are forming throughout the country
and the organization publishes a bi-monthly newsletter.
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More Information
Selected links to other websites with information about caregiving at home.
Who Are
Caregivers?
from the AARP website.
Community
Care Options
A fact sheet from The Family Caregiver Alliance website.
Alternatives
to Nursing Home Care
From
the Official U.S. Government Site for People with Medicare
Home Health
Care
General information about various kinds of home health care.
MEDLINEplus: Health Information
Over 600 topics on conditions, diseases, and wellness; drug information; a
medical encyclopedia; directories of healthcare providers; and more.
MEDLINEplus:
Caregivers.
MEDLINEplus:
Home Care Services.
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