My daughter Trinity Conn was born at OHSU hospital on April 3rd, 2008, due to my gestational diabetes. She looked healthy and went home several days later with a touch of jaundice and they figured she would be fine. Well, several weeks went by, and she was getting worse - whites of the eyes turning yellow and her skin as well.
So we went to Doernbecher and they diagnosed her with Biliary Atresia, which is a blockage or underdeveloped bile duct. It happens to about one in every 15,000 to 20,000 children in the world and it is not genetic. So I decided for her to have a Kasi Procedure, where they take the small intestine and hook it to the liver to see if that will work, and they also removed her gallbladder and bile duct since they were not working.
That was June 3rd, 2008, and she was two months old. After waiting several months in October they told me the Kasi failed and that she would have to be on the UNOS list and have a liver transplant down in Palo Alto, California. We were in and out of Doernbecher due to complications and my family is very grateful to the staff and doctors for keeping my little girl as comfortable as possible during our stay up there. Because of Doernbecher my daughter is alive and thriving well!