My Doernbecher Story

Trinity's Story - Doernbecher Children's Hospital

Trinity's Story

My daughter Trinity Conn was born at OHSU hospital on April 3rd, 2008, due to my gestational diabetes. She looked healthy and went home several days later with a touch of jaundice and they figured she would be fine. Well, several weeks went by, and she was getting worse - whites of the eyes turning yellow and her skin as well.

So we went to Doernbecher and they diagnosed her with Biliary Atresia, which is a blockage or underdeveloped bile duct. It happens to about one in every 15,000 to 20,000 children in the world and it is not genetic. So I decided for her to have a Kasi Procedure, where they take the small intestine and hook it to the liver to see if that will work, and they also removed her gallbladder and bile duct since they were not working.

That was June 3rd, 2008, and she was two months old. After waiting several months in October they told me the Kasi failed and that she would have to be on the UNOS list and have a liver transplant down in Palo Alto, California. We were in and out of Doernbecher due to complications and my family is very grateful to the staff and doctors for keeping my little girl as comfortable as possible during our stay up there. Because of Doernbecher my daughter is alive and thriving well!

 

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Comments (2)

Chantel

Thank You Holly! :-) we have been through many bumps down the road but she is a healthy little girl, and we just celebrated her 4 th liver transplant birthday on Friday!

Posted Nov 18 2012 10:05:06:980AM

Holly

Hope Trinity is doing well. We pray for her. Doernbechers saved my daughters life also born with Biliary atresia and now at 13 she wants to vounteer at the hopitol and help children with her story. She said "if I could give her a huge hug I know what she has been through :) "

Posted May 1 2012 08:09:00:000AM