My Doernbecher Story

Taylor's Story - Doernbecher Children's Hospital

Taylor's Story

Our two-year-old daughter, Taylor, was born with Tetralogy of Fallot, a congenital heart defect. When the first cardiologist we saw didn’t seem as concerned about Taylor’s condition as we thought he should be, we turned to the cardiologists at OHSU Doernbecher Children’s Hospital.

Babies with Tetralogy of Fallot often have “tet spells,” incidents that occur when the oxygen level in the blood suddenly drops. During a tet spell a baby turns blue and may have a hard time breathing, become unresponsive or even lose consciousness. Taylor suffered four tet spells before she was six months old. The third spell was so bad we dialed 9-1-1. That was when we knew we needed Doernbecher.

After examining Taylor, the first doctor we saw confirmed her diagnosis and recommended immediate action - heart surgery - to correct her problem.

The Doernbecher staff did a wonderful job preparing us for Taylor’s surgery. We met with Taylor’s surgeon and the anesthesiologist, as well as a hospital social worker who took the time to show us around the area where Taylor would be cared for before and after the surgery. During the surgery, we received regular updates from Taylor’s team, and social workers frequently checked in on us. Taylor’s surgeon personally delivered the news that the operation was very successful.

Taylor just had her a follow-up appointment at Doernbecher and she’s doing fine. Every day we are so grateful to the amazing doctors and nurses who have given Taylor a normal, happy life. Taylor will need to have an artificial pulmonary valve put in when she is around ten years old, and we wouldn’t consider having it done anywhere but Doernbecher.

More about Doernbecher's Pediatric Cardiology Program

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