Merry Heart: a camp with its own beat

Tim LaBarge serves on the board of Merry Heart Children’s Camp. He’s also a photographer in Portland. Below, he shares some special moments and memories from Merry Heart Children’s Camp. *** Twenty-five children sat on log benches high above the Bull Run River and Mount Hood, towering in the distance, turned a shade of orange and then pink as the sun began to set. But hardly anyone noticed. All eyes were on cardiac surgeon Dr. … Read More

Getting home safely

After finishing up clinic on a Monday evening at about 5:30, I headed over to the pharmacy to pick up a prescription. As I passed through the drop-off circle on the way to the Physician’s Pavilion, I noted a new family wrestling with their car safety seat – the father pulling straps while the mother sat in the back with their newborn. I could see the frustration on both of their faces, exhausted from the … Read More

A letter from one ‘well child’ to another

A few weeks ago, pediatric resident Dr. Antwon Chavis wrote a blog post called “11 things your ‘well child’ wants you to know.” This week, he’s back with a letter for all the other ‘well children’ out there.  Hey there, My name is Antwon. I heard you’re the sibling to a child with special needs, like I am. I wanted to write you a letter explaining why I think you’re amazing, and how lucky I … Read More

Lizzy’s Doernbecher story

When 10-year-old Doernbecher Freestyle patient-designer Lizzy Olivan came down with a fever last summer, her mom Beatriz knew something wasn’t right. We sat down to learn more about Lizzy (now 11) and her battle against Acute Lymphoblastic Leukemia (ALL). *** Can you tell us more about Lizzy’s diagnosis? Last August, she came down with a fever. I gave her some Tylenol and kept a close eye on her. After four days, I took her to … Read More

11 things your ‘well child’ wants you to know

Growing up with an autistic brother had its fair share of rises and falls. But the impact he has made on my character, virtues and spirit continues to surprise me every day. When I was around 12, I was traveling with my brother on a plane between my mother and father’s house. We happened to sit next to a very talkative woman. This woman, however, didn’t talk much about herself. In fact, I did most … Read More

An important message from Doernbecher Freestyle patient-designer Jacob

Hello! It’s Doernbecher Freestyle patient-designer Jacob Burris here. My shoe designs are coming along great. I hope that they are going to blow your minds!!! I wanted to share a little something about myself and other congenital heart defect (CHD) survivors. A lot of people tend to think that I am all better now, or “fixed” after my heart surgery. Well, the truth is that most people with a CHD have to take medicine to regulate … Read More

Jacob’s heart story

Below, Janice Burris shares her son’s Doernbecher story. Thirteen-year-old Jacob is one of our 2015 Doernbecher Freestyle patient-designers, and he’ll be following up next week with a post of his own! *** Jacob was born a healthy baby boy thirteen years ago. He has grown up to be a great student, a dedicated athlete, and an all-around great person. Last May during a routine well-child/immunization visit to the pediatrician, we learned that Jacob had high … Read More

The power of pretend: Chelsea’s Closet brings dress-up and play to hospitalized children

For a hospitalized child, a chance to play, imagine and socialize is powerful medicine. Jason and Alison Hicks experienced this firsthand with their daughter, Chelsea, during her cancer treatments at OHSU Doernbecher Children’s Hospital. Below, Alison shares her daughter’s story and explains how the Chelsea Hicks Foundation is bringing joy to patients like Chelsea, one costume at a time. *** When our two older daughters and Chelsea’s cousins visited her at Doernbecher, they brought dress-up … Read More

Our lemonade experience: the Charles family’s story

When he grows up, Doernbecher Freestyle patient-designer John Charles wants to be a pro athlete. (His favorite athlete? Damian Lillard, of course). He enjoys being outside, hiking and spending time with his dog, Teagan. Though you wouldn’t guess it by looking at him, John was diagnosed with Crohn’s Disease last year. Below, John’s parents, Tony and Mary Charles, explain how John’s journey has impacted their family. *** When your 9-year-old child becomes progressively ill, is not … Read More

Summertime food tips

For many children, summer break means lazy mornings and afternoon swims. But for others, summer brings grumbling bellies and the pain of hunger. It’s estimated that 15 percent of Oregon families are food insecure. In the U.S., it’s estimated that 16 million children do not have enough to eat each day, skip meals, eat watered-down food or go hungry. Summertime brings an added challenge for parents because many school-aged children no longer have access to free- or reduced-price breakfast and lunch, and money … Read More

Doernbecher Best in the Country U.S. News & World Report

Doernbecher Best in the Country U.S. News & World Report


Participation Guidelines

Remember: information you share here is public; it isn't medical advice. Need advice or treatment? Contact your healthcare provider directly. Read our Terms of Use and this disclaimer for details.
wordpress stats plugin