Advocacy

11 things your ‘well child’ wants you to know

Growing up with an autistic brother had its fair share of rises and falls. But the impact he has made on my character, virtues and spirit continues to surprise me every day. When I was around 12, I was traveling with my brother on a plane between my mother and father’s house. We happened to sit next to a very talkative woman. This woman, however, didn’t talk much about herself. In fact, I did most … Read More

An important message from Doernbecher Freestyle patient-designer Jacob

Hello! It’s Doernbecher Freestyle patient-designer Jacob Burris here. My shoe designs are coming along great. I hope that they are going to blow your minds!!! I wanted to share a little something about myself and other congenital heart defect (CHD) survivors. A lot of people tend to think that I am all better now, or “fixed” after my heart surgery. Well, the truth is that most people with a CHD have to take medicine to regulate … Read More

Jacob’s heart story

Below, Janice Burris shares her son’s Doernbecher story. Thirteen-year-old Jacob is one of our 2015 Doernbecher Freestyle patient-designers, and he’ll be following up next week with a post of his own! *** Jacob was born a healthy baby boy thirteen years ago. He has grown up to be a great student, a dedicated athlete, and an all-around great person. Last May during a routine well-child/immunization visit to the pediatrician, we learned that Jacob had high … Read More

The power of pretend: Chelsea’s Closet brings dress-up and play to hospitalized children

For a hospitalized child, a chance to play, imagine and socialize is powerful medicine. Jason and Alison Hicks experienced this firsthand with their daughter, Chelsea, during her cancer treatments at OHSU Doernbecher Children’s Hospital. Below, Alison shares her daughter’s story and explains how the Chelsea Hicks Foundation is bringing joy to patients like Chelsea, one costume at a time. *** When our two older daughters and Chelsea’s cousins visited her at Doernbecher, they brought dress-up … Read More

Our lemonade experience: the Charles family’s story

When he grows up, Doernbecher Freestyle patient-designer John Charles wants to be a pro athlete. (His favorite athlete? Damian Lillard, of course). He enjoys being outside, hiking and spending time with his dog, Teagan. Though you wouldn’t guess it by looking at him, John was diagnosed with Crohn’s Disease last year. Below, John’s parents, Tony and Mary Charles, explain how John’s journey has impacted their family. *** When your 9-year-old child becomes progressively ill, is not … Read More

Summertime food tips

For many children, summer break means lazy mornings and afternoon swims. But for others, summer brings grumbling bellies and the pain of hunger. It’s estimated that 15 percent of Oregon families are food insecure. In the U.S., it’s estimated that 16 million children do not have enough to eat each day, skip meals, eat watered-down food or go hungry. Summertime brings an added challenge for parents because many school-aged children no longer have access to free- or reduced-price breakfast and lunch, and money … Read More

The vaccine every teenager needs

Odds are, you or someone you know has been infected with human papillomavirus, or HPV. It’s the most common sexually transmitted disease (STD) in the US, infecting more than 79 million Americans. More than 14 million people, including teens, become infected with HPV each year. HPV is also responsible for 70 percent of cervical cancer diagnoses, and can also be responsible for throat, penile and rectal cancer. The good news is there’s a vaccine that … Read More

Great Glasses Play Day 2015

Having a child with eye conditions that requires wearing glasses, contact lenses, or eye patches can be challenging and isolating for parents and kids alike. The Great Glasses Play Day, held locally on Saturday, May 2, from 2 to 4 p.m. at the OHSU Casey Eye Institute, is an international event designed to bring a sense of normalcy (and a lot of fun) to the lives of kids who wear glasses or eye patches. The … Read More

About the man who put kids’ health on the national research agenda

Healthcare practice and medical science are dominated by the diseases many of us may acquire at some point in our lives. Not surprisingly, many of the diseases that affect children get short shrift and the underlying science often lacks adequate funding. Seldom do we escape this pseudo logic whereby rare disease research provides a poor return on investment – in other words, few cases equals low impact. On March 9, David Frohnmayer passed away. Dave … Read More

Doernbecher offers free flu vaccine to its patients’ parents, close family contacts

OHSU Doernbecher Children’s Hospital is offering free flu shots to the parents and close family contacts of its established patients. The “Free Vaccine for Parents Cocooning Project” is intended to protect OHSU Doernbecher’s youngest and most vulnerable patients. Babies younger than 6 months, for example, cannot receive the flu vaccine.The next best means of protection is to “cocoon” the infants, or insulate them from infection, by immunizing their family members. Providing free vaccine to pediatric … Read More

Doernbecher Best in the Country U.S. News & World Report

Doernbecher Best in the Country U.S. News & World Report

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