Advocacy/Resources
OHSU's Neuromuscular Disease Center has strong ties with numerous groups which provide support to individuals with neuromuscular disorders. Below is a list of some of the groups in the Portland metropolitan area:
Muscular Dystrophy Association (MDA USA)
ADULT NEUROMUSCULAR SUPPORT
GROUP
1ST TUESDAY OF EVERY MONTH, 4:30-6:00PM
CDRC-ROOM 3200
707 SW GAINES ROAD, PORTLAND 97239
FACILITATOR: CYNDY RUTTO, RN, MS
FAMILY SUPPORT GROUP
1ST THURSDAY OF EVERY MONTH 7-8:30PM
SHRINER'S HOSPITAL FOR CHILDREN
3101 SW SAM JACKSON PARK ROAD, PORTLAND
FACILITATOR, BECKY SPEULDA, MSW
for more information contact Gavin Johnson of the Portland MDA at gjohnson@mdausa.org
Neuromuscular Disease Online Chats
The MDA organizes online chat sessions for patients, family and caregivers.
A current caledndar of these events is listed on the MDA website .
Neuromuscular Disease Center
Oregon Health & Science University
email neuromus@ohsu.edu
Website comments or suggestions can be directed to
phone: (503) 494-5236 fax: (503) 494-0966
Page Updated:Wednesday, November 15, 2006 08:51:42 AM -0800
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